Interdisciplinary Pituitary Disorders Centre of Excellence: Assessment of Patient Education Tools
This study involves a formative evaluation of the health literacy resources that we have
already developed. We see approximately 60 new patients a year with pituitary disorders,
plus the follow-up patients: all of these patients will be offered the opportunity to
participate in the study. These materials include a website (containing videos,
illustrations and written materials) and plain language educational brochures. The
educational materials include information that patients will need throughout their
experience with a pituitary tumour, ranging from the signs and symptoms of tumours, to
long-term post-operative lifestyle changes. This evaluation will be a mixed-methods
evaluation.
Part A (Think aloud) will use "think-aloud" processes to evaluate the usefulness and ease of
use of a website that we have developed with patients and their families.
Part B (Resource assessment) will involve the use of questionnaires followed by
semi-structured interviews with patients and families before and after using the resources.
Interventional
Allocation: Randomized, Endpoint Classification: Efficacy Study, Intervention Model: Parallel Assignment, Masking: Single Blind (Outcomes Assessor), Primary Purpose: Supportive Care
The level of knowledge that patients have of their condition before and after reviewing the materials provided, and ease of use of educational materials and user satisfaction
1-2 yrs
No
Michael Cusimano, MD, PhD
Principal Investigator
St. Michael's Hospital, Toronto
Canada: Ethics Review Committee
SMHAIF - 058
NCT01775332
February 2013
December 2014
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