Family Access to Care Study (FACS)
Families affected by HIV and AIDS require access to a comprehensive continuum of services.
Findings from our own and other recently completed federally sponsored intervention trials
and other studies could be used to help expand and enhance these services. However, a number
of fundamental questions must first be answered about the feasibility of "technology
transfer." This study will address this issue by conducting individual interviews and focus
groups with providers from 64 medical care and social service settings. Data will also be
obtained through a comprehensive assessment of providers' capacities to serve families and
to participate in technology transfer, including dimensions of organizational mission and
leadership, availability of resources, and connections in the community. Thirty
patients/clients served by each setting along with approximately twenty of their family
members will also be individually interviewed to assess their needs for services, factors
that affect their desire for family-oriented services, and their willingness to take part in
psychosocial intervention studies. Data analysis will determine how initial setting
readiness and setting capacities, and feedback about patient and family needs and
willingness to participate in research, influence change in readiness, interest in capacity
building and participation in research partnership activities. We will also conduct
hierarchical data analyses to better understand how providers' readiness and capacities are
related to clients'and families' service needs, barriers to participation, and willingness
to participate in research. Study findings will guide efforts to implement family-oriented
intervention research in frontline community service settings, and will help to establish a
scientific framework for studying the process of technology transfer. Additionally, this
project will lay the groundwork for sustained research collaboration with the network of
community providers participating in this study to further explore ways to address the needs
of families affected by HIV/AIDS.
Observational
Observational Model: Case-Only, Time Perspective: Prospective
Bruce Rapkin, PhD
Principal Investigator
Memorial Sloan-Kettering Cancer Center
United States: Food and Drug Administration
03-008
NCT00582218
February 2003
February 2008
Name | Location |
---|---|
Memorial Sloan-Kettering Cancer Center | New York, New York 10021 |