Retrospective Clinical Outcome Study of Pediatric Dermatofibrosarcoma Protuberans: Single Institutional Experience of Twelve Cases From 1977-2002
Soft tissue sarcoma was rarely seen in pediatric patients, and pediatric Dermatofibrosarcoma
Protuberans (PDFSP) was even rare. To our knowledge, the largest report constituted of 19
cases (five of them had no follow-up (FU) status) (1). So we proposed this retrospective
study based on the cancer registry of our hospital. Twelve cases who were diagnosed as DFSP
before age of 18 were identified. But all of them had been lost of FU for at least two
years. So we will try to contact these patients and asked them to be back to our clinic for
routine surveillance (history taking and physical exam and optional local image/chest xray)
and quality of life (QoL) evaluation after pathological review if this clinical study was
approved (2)
Observational
Observational Model: Defined Population, Observational Model: Natural History, Time Perspective: Longitudinal, Time Perspective: Retrospective
Rong-Sen Yang, M.D., Ph.D.
Study Chair
National Taiwan University Hospital
Taiwan: Department of Health
9461700618
NCT00173355
June 2005
August 2005
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