I was recently diagnosed with Subcutaneous Paniculitis-Like T-Cell lymphoma and was wondering if you may have ever treated or know of research,treatment plans, etc

Dr. Jag, I was recently diagnosed with Subcutaneous Paniculitis-Like T-Cell lymphoma and was wondering if you may have ever treated or know of research, treatment plans, etc, ...I am being treated at a wonderful cancer center and my team of drs are wonderful, but we are all puzzled since I am only the 201st patient to have been diagnosed with this form of lymphoma since it was discovered in 1991! I am so glad to have found this website so that I can hopefully find someone out there to help me! Thanks so much for your time!