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Follow-up of Gynecological Cancer Patients. Their Needs and Expectations. A Cooperation Project.

19 Years
Not Enrolling
Endometrial Cancer, Ovarian Cancer, Cervical Cancer

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Trial Information

Follow-up of Gynecological Cancer Patients. Their Needs and Expectations. A Cooperation Project.

After gynaecological cancer patients have completed their treatment, they are followed up at
a gynaecological outpatient clinic for a number of years. The aim of such follow-up is to
detect recurrence, improve survival and reduce adverse effects of the treatment. The
national guide for oncological gynaecology recommends follow-up by a specialist for five
years at intervals depending on cancer type. Several review studies on follow-up of
endometrial, cervical and ovarian cancer patients show large international variations in
follow-up routines. There are only retrospective studies available, and they indicate that
most recurrences are discovered within the first three years after completed treatment, and,
in most cases, by the women themselves. More intensive surveillance does not appear to
affect the time for discovery of recurrence.

A few randomised controlled studies and retrospective cohort studies have been published
that focus on follow-up of colon cancer and breast cancer patients by general practitioners
versus by hospital specialists. These studies have not shown any significant differences
between the groups in terms of detection of recurrence, incidence of serious clinical events
connected with recurrence or health-related quality of life.

The investigators therefore plan to perform a study in which both gynaecological cancer
patients and their regular general practitioners are asked about their views on patient
follow-up after completed treatment. The investigators especially wish to focus on the
collaboration aspect.

Inclusion Criteria:

- > 18 years

- histologically or cytologically proven cancer

Exclusion Criteria:

- Unability to fill out questionnaires (due to language or cognitive barriers)

Type of Study:


Study Design:

Observational Model: Case-Only, Time Perspective: Cross-Sectional

Outcome Measure:

Patient expectation questionnaire

Outcome Description:

The patients will be asked to fill in a quesionnaire regarding their expectations on follow-up care

Outcome Time Frame:

within the first 30 days after primary treatment

Safety Issue:


Principal Investigator

Mette Brekke, PhD

Investigator Role:

Study Chair

Investigator Affiliation:

University of Oslo


Norway:National Committee for Medical and Health Research Ethics

Study ID:




Start Date:

September 2012

Completion Date:

December 2015

Related Keywords:

  • Endometrial Cancer
  • Ovarian Cancer
  • Cervical Cancer
  • cancer
  • gynecological
  • expectations
  • satisfaction
  • cooperation
  • Endometrial Neoplasms
  • Uterine Cervical Neoplasms
  • Ovarian Neoplasms
  • Adenoma