Trial Information

Follow-up of Gynecological Cancer Patients. Their Needs and Expectations. A Cooperation Project.

After gynaecological cancer patients have completed their treatment, they are followed up at
a gynaecological outpatient clinic for a number of years. The aim of such follow-up is to
detect recurrence, improve survival and reduce adverse effects of the treatment. The
national guide for oncological gynaecology recommends follow-up by a specialist for five
years at intervals depending on cancer type. Several review studies on follow-up of
endometrial, cervical and ovarian cancer patients show large international variations in
follow-up routines. There are only retrospective studies available, and they indicate that
most recurrences are discovered within the first three years after completed treatment, and,
in most cases, by the women themselves. More intensive surveillance does not appear to
affect the time for discovery of recurrence.

A few randomised controlled studies and retrospective cohort studies have been published
that focus on follow-up of colon cancer and breast cancer patients by general practitioners
versus by hospital specialists. These studies have not shown any significant differences
between the groups in terms of detection of recurrence, incidence of serious clinical events
connected with recurrence or health-related quality of life.

The investigators therefore plan to perform a study in which both gynaecological cancer
patients and their regular general practitioners are asked about their views on patient
follow-up after completed treatment. The investigators especially wish to focus on the
collaboration aspect.