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Improving End of Life Care in Head and Neck Cancer


N/A
21 Years
N/A
Open (Enrolling by invite only)
Both
The Families or Next of Kin of Patients Treated at MSKCC for Non-cutaneous Squamous Cell Carcinomas of the, Upper Aerodigestive Tract

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Trial Information

Improving End of Life Care in Head and Neck Cancer


Inclusion Criteria:



- Head and neck cancer patients who received their treatment at MSKCC who have died of
noncutaneous squamous cell carcinomas of the upper aerodigestive tract and for whom
family / next of kin contact information is available.

- Time of patient death must have been at least 6 months ago and no more than 4 years
ago

- Patient age at time of death must be over 21 years of age.

- Those interviewed must be English-fluent.

Exclusion Criteria:

- Non-English speaking interviewees

- Next-of-kin who reported being unfamiliar with care received during the last month of
life

- Next-of-kin who did not identify themselves as one of the patient's primary social
supports during the last month of life

- Next-of-kin who were not physically present with the deceased at least once during
the last week of his/her life

- Next-of-kin under age 21

Type of Study:

Observational

Study Design:

Observational Model: Family-Based, Time Perspective: Retrospective

Outcome Measure:

quality of care received by patients

Outcome Description:

To determine the perception of the family members of the quality of care received by patients with aerodigestive mucosal squamous cell carcinoma of the head and neck at the end of their lives. A survey will be administered to the families and next-of-kin of deceased patients. A recently validated survey instrument, the Family Assessment of Treatment at the End of life (FATE), is designed to assess treatment at the end of life based upon the responses of family members of the deceased (Finlay, Shreve et al. 2008).

Outcome Time Frame:

1 year

Safety Issue:

No

Principal Investigator

Snehal Patel, MD

Investigator Role:

Principal Investigator

Investigator Affiliation:

Memorial Sloan-Kettering Cancer Center

Authority:

United States: Institutional Review Board

Study ID:

12-136

NCT ID:

NCT01632969

Start Date:

June 2012

Completion Date:

June 2013

Related Keywords:

  • The Families or Next of Kin of Patients Treated at MSKCC for Non-cutaneous Squamous Cell Carcinomas of the
  • Upper Aerodigestive Tract
  • 12-136
  • Carcinoma
  • Carcinoma, Squamous Cell
  • Head and Neck Neoplasms

Name

Location
Memorial Sloan-Kettering Cancer Center New York, New York  10021