Informed Brain Cancer Patients
18 Years
89 Years
Both
Brain Tumor
Trial Information
Informed Brain Cancer Patients
A mere subset of the reasons behind unmet health care literacy needs include the health care
systems' increasing complexity, increased time constraints, profound treatment decision
making requirements, decreased financial resources, fracturing social networks and
diversifying educational and cultural needs.
This project will use focus groups to explore the factors involved in brain cancer health
care literacy from the perspectives of patients and those involved in their care.
Hypothesis generated from this project will be directly applied toward future projects. The
overarching goals are improved access and adequacy of health care literacy information
through the eventual development of validated, useful, reliable health care literacy
information tools for brain cancer patients and those involved in their care.
Inclusion Criteria:
BRAIN TUMOR PATIENTS:
- 18 to 89 years of age
- Have or have had any type of brain tumor
- Ability to communicate in English
- Willingness to participate in a 30-60 minute focus group
HEALTH CARE PROVIDERS:
- 18 to 89 years of age
- Be a health care provider who cares for any type of brain tumor
- Ability to communicate in English
- Willingness to participate in a 30-60 minute focus group
Exclusion Criteria:
- None
Type of Study:
Observational
Study Design:
Time Perspective: Prospective
Outcome Measure:
Explore the factors involved in health care literacy from the perspective of brain cancer patients.
Outcome Description:
An investigator experienced in semi-structured focus group research will faclitate focus group sessions by using a generalized list of topics and open-ended discussion questions.
Outcome Time Frame:
1 Year
Safety Issue:
No
Principal Investigator
Erin M Dunbar, MD
Investigator Role:
Principal Investigator
Investigator Affiliation:
University of Florida
Authority:
United States: Institutional Review Board
Study ID:
708-2009
NCT ID:
NCT01130220
Start Date:
May 2010
Completion Date:
December 2011
Related Keywords:
- Brain Tumor
- Brain Tumor
- Brain Neoplasm
- Brain Neoplasms
Name | Location |
|---|---|
| University of Florida | Gainesville, Florida 32610-0277 |
