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Sister Survivor: African American Breast Cancer Coalition


N/A
18 Years
N/A
Not Enrolling
Female
Breast Cancer, Cancer Survivor

Thank you

Trial Information

Sister Survivor: African American Breast Cancer Coalition


OBJECTIVES:

- Characterize five established Los Angeles (LA)-based, peer-led African American Breast
Cancer Survivor (AABCS) support groups by identifying and evaluating the successful
elements of structure and process that distinguish these groups: the purpose and goals;
theories and techniques that are utilized; the structure of the group and
implementation of specific goals; the cultural aspects that are incorporated to enhance
the efficacy; and similarities and differences among these AABCS support groups.

- Develop a preliminary "Culturally Informed Breast Cancer Support Group Guide" on how to
organize and maintain support groups, modeled on the "best model" experiences of the
five established LA-based support groups for AABCS.

- Conduct three needs-assessment focus groups and 5 key informant interviews in the
Inland Empire to evaluate the psychosocial needs and resources of AABCS in that region.

OUTLINE: At least 10 support group leaders (2 from each support group) undergo
semi-structured interviews to elicit information about the needs of breast cancer survivors
in their community and the cultural modes of support that are given. Eight to twelve African
American Breast Cancer Survivors (AABCS) participate in 5 focus group discussions and
complete a questionnaire about their breast cancer and experience with support groups for
qualitative and quantitative analysis.

At least 5 Inland Empire community leaders undergo semi-structured interviews to elicit
information about the needs of breast cancer survivors in their community. Eight to twelve
AABCS from the Inland Empire participate in 3 focus group discussions and complete a
questionnaire about their breast cancer and experience with support groups for qualitative
and quantitative analysis.

Inclusion Criteria


DISEASE CHARACTERISTICS:

- Meets 1 of the following criteria:

- African American Breast Cancer Survivor (AABCS) meeting 1 of the following
criteria:

- A member of 1 of the 5 support groups listed below

- Live in the Inland Empire region of California

- A cancer support group leader or facilitator of 1 of the 5 established support
groups in Los Angeles:

- Women of Essence (WOE)

- Women of Color (WOC)

- Support Sisters African American Breast Cancer Support Groups

- Sisters

- Celebrate Life

- A community leader knowledgeable about breast cancer support services in the
Inland Empire region

PATIENT CHARACTERISTICS:

- Not specified

PRIOR CONCURRENT THERAPY:

- Not specified

Type of Study:

Interventional

Study Design:

Masking: Open Label

Outcome Measure:

Characterization of five established Los Angeles-based, peer-led African American Breast Cancer Survivor (AABCS) support groups

Safety Issue:

No

Principal Investigator

Kimlin Ashing-Giwa, PhD

Investigator Role:

Principal Investigator

Investigator Affiliation:

Beckman Research Institute

Authority:

United States: Institutional Review Board

Study ID:

07170

NCT ID:

NCT00949871

Start Date:

January 2008

Completion Date:

Related Keywords:

  • Breast Cancer
  • Cancer Survivor
  • stage I breast cancer
  • stage II breast cancer
  • stage IIIA breast cancer
  • stage IIIB breast cancer
  • stage IIIC breast cancer
  • stage IV breast cancer
  • cancer survivor
  • Breast Neoplasms

Name

Location

City of Hope Comprehensive Cancer CenterDuarte, California  91010