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A Shared Care Approach for Seriously Ill Cancer Patients Between General Practice, Discharge Department and a Specialist Palliative Care Team


N/A
18 Years
N/A
Not Enrolling
Both
Palliative Care, Neoplasms

Thank you

Trial Information

A Shared Care Approach for Seriously Ill Cancer Patients Between General Practice, Discharge Department and a Specialist Palliative Care Team


The intervention in the study is of organisational character. The patients will be
randomised into two groups (groups B and C). A group of usual care patients will be included
primary to the intervention (group A). The groups are:

A. Usual discharge with regular discharge letter to the GP. The GP, together with the
community nurse, is responsible for the palliative care, including referral to a specialist
palliative care team, hospice, hospital, etc., if necessary

B. Discharge with referral to a specialist palliative care team. This is a patient-centred
shared care model in which the palliative team helps to organise the patient's treatment and
care

C. Discharge with extra effort put into improving the communication between the hospital and
the GP. The GP will receive a phone call from the doctor who is discharging the patient, a
detailed discharge letter, written information about the patient's type of cancer and acute
oncological symptoms, name and phone number of the community nurse and name and phone number
of a specialist in palliative medicine, who can be contacted for advice. This is a shared
care model, where focus is on supporting the health care professionals.


Inclusion Criteria:



In order to be included the patients have to be diagnosed as suffering from terminal
cancer. The patients should also:

1. Be 18 years or older

2. Be able to speak and write Danish fluently

3. Give written and spoken consent

4. Be able to manage in their own home, with or without the help of carers and district
nurses

5. Be informed about the diagnosis, also that it is incurable

6. Be registered as suffering from a terminal illness or fulfil the criteria for this -

Exclusion Criteria:

Patients are excluded if they:

1. Have a low level of cognitive skills, which makes it difficult for them to fill in a
questionnaire

2. Are residents of a nursing home at the time of inclusion

3. Are receiving oncologic treatment which requires attending an out-patients clinic
regularly

4. Already have established contact with a specialist palliative care team at the time
of inclusion -

Type of Study:

Interventional

Study Design:

Allocation: Randomized, Intervention Model: Factorial Assignment, Masking: Open Label, Primary Purpose: Health Services Research

Outcome Measure:

Patients wish for place of death and place of terminal care fulfilled

Outcome Time Frame:

The patient will be asked about preference for place of death and place for terminal care at inclusion and a month later. At the time of death we will be able to establish weather the patient had his or her wishes fulfilled.

Safety Issue:

No

Principal Investigator

Frede Olesen, Professor

Investigator Role:

Study Director

Investigator Affiliation:

Research Unit for General Practice, Aarhus University

Authority:

Denmark: Danish Dataprotection Agency

Study ID:

15273887

NCT ID:

NCT00594971

Start Date:

April 2008

Completion Date:

November 2010

Related Keywords:

  • Palliative Care
  • Neoplasms
  • Health Services Research
  • Family practice
  • Neoplasms

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