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International Registry for Vascular Anomalies Associated With Coagulopathy


N/A
N/A
N/A
Open (Enrolling)
Both
Multifocal Lymphangioendotheliomatosis With Thrombocytopenia, Cutaneovisceral Angiomatosis With Thrombocytopenia, Vascular Anomaly With Thrombocytopenia, Hemangiomas

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Trial Information

International Registry for Vascular Anomalies Associated With Coagulopathy


After informed consent is obtained a detailed question will be mailed to participating
patients and families. This questionnaire will also be available electronically through an
educational website. Data collected will include photographs of skin lesions, video images
of gastrointestinal lesions, demographic data, clinical information, therapeutic
interventions, glass slides of tissue biopsies, and collection of DNA. Enrollment will be
patient family driven and modeled after several successful registries of rare diseases.


Inclusion Criteria:



- Subjects with a vascular anomaly with coagulopathy

Exclusion Criteria:

- Subjects without a vascular anomaly with coagulopathy

Type of Study:

Observational

Study Design:

N/A

Principal Investigator

Beth Drolet, MD

Investigator Role:

Principal Investigator

Investigator Affiliation:

Medical College of Wisconsin

Authority:

United States: Institutional Review Board

Study ID:

CHW07/226

NCT ID:

NCT00576888

Start Date:

November 2007

Completion Date:

December 2015

Related Keywords:

  • Multifocal Lymphangioendotheliomatosis With Thrombocytopenia
  • Cutaneovisceral Angiomatosis With Thrombocytopenia
  • Vascular Anomaly With Thrombocytopenia
  • Hemangiomas
  • Multifocal lymphangioendoltheliomatosis with thrombocytopenia
  • Cutaneovisceral angiomatosis with thrombocytopenia
  • Thrombocytopenia
  • Hemangiomas
  • Hemangiomatosis
  • Lymphatic malformation
  • Kasabach-Merritt
  • Blue-rubber bleb nevus
  • Angiomatosis
  • Congenital Abnormalities
  • Angiomatosis
  • Blood Coagulation Disorders
  • Hemostatic Disorders
  • Hemangioma
  • Thrombocytopenia
  • Vascular Malformations

Name

Location

Medical College of WisconsinMilwaukee, Wisconsin  53226