International Registry for Vascular Anomalies Associated With Coagulopathy
N/A
N/A
Both
Multifocal Lymphangioendotheliomatosis With Thrombocytopenia, Cutaneovisceral Angiomatosis With Thrombocytopenia, Vascular Anomaly With Thrombocytopenia, Hemangiomas
Trial Information
International Registry for Vascular Anomalies Associated With Coagulopathy
After informed consent is obtained a detailed question will be mailed to participating
patients and families. This questionnaire will also be available electronically through an
educational website. Data collected will include photographs of skin lesions, video images
of gastrointestinal lesions, demographic data, clinical information, therapeutic
interventions, glass slides of tissue biopsies, and collection of DNA. Enrollment will be
patient family driven and modeled after several successful registries of rare diseases.
Inclusion Criteria:
- Subjects with a vascular anomaly with coagulopathy
Exclusion Criteria:
- Subjects without a vascular anomaly with coagulopathy
Type of Study:
Observational
Study Design:
N/A
Principal Investigator
Beth Drolet, MD
Investigator Role:
Principal Investigator
Investigator Affiliation:
Medical College of Wisconsin
Authority:
United States: Institutional Review Board
Study ID:
CHW07/226
NCT ID:
NCT00576888
Start Date:
November 2007
Completion Date:
December 2015
Related Keywords:
- Multifocal Lymphangioendotheliomatosis With Thrombocytopenia
- Cutaneovisceral Angiomatosis With Thrombocytopenia
- Vascular Anomaly With Thrombocytopenia
- Hemangiomas
- Multifocal lymphangioendoltheliomatosis with thrombocytopenia
- Cutaneovisceral angiomatosis with thrombocytopenia
- Thrombocytopenia
- Hemangiomas
- Hemangiomatosis
- Lymphatic malformation
- Kasabach-Merritt
- Blue-rubber bleb nevus
- Angiomatosis
- Congenital Abnormalities
- Angiomatosis
- Blood Coagulation Disorders
- Hemostatic Disorders
- Hemangioma
- Thrombocytopenia
- Vascular Malformations
Name | Location |
|---|---|
| Medical College of Wisconsin | Milwaukee, Wisconsin 53226 |
