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Psychosocial Aspects of Multiple Endocrine Neoplasia (MEN) Syndromes


N/A
18 Years
N/A
Open (Enrolling)
Both
Multiple Endocrine Neoplasia

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Trial Information

Psychosocial Aspects of Multiple Endocrine Neoplasia (MEN) Syndromes


The proposed cross-sectional study is intended to obtain information regarding current
surveillance behaviors and other psychosocial outcomes among persons affected by the
multiple endocrine neoplasia (MEN) 1 or MEN2, which are inherited conditions.

Study participants will include patients who have been seen previously at MDACC for
evaluation of MEN1 or MEN2. Because this is the first time investigators are contacting
these patients to invite them to participate in psychosocial research, the proposed study
also will help determine the feasibility of conducting similar studies in the future.

Investigators anticipate that data gathered from this study will enhance existing knowledge
about the psychological and behavioral aspects of the MEN syndromes, and will inform future
research efforts directed toward this understudied population.


Inclusion Criteria:



1. Adults age 18 years or older, with a clinical or genetic diagnosis of MEN1 or MEN2

2. Spouse, Significant Other, or Family Member who is at least 18 years of age and who
is related to an individual who is a patient at MDACC and who has been diagnosed with
MEN1.

3. Ability to read and write English

Exclusion Criteria:

1) Inability to be contacted via mail (i.e., no contact information on record, incorrect
address)

Type of Study:

Observational

Study Design:

Observational Model: Case-Only, Time Perspective: Prospective

Outcome Measure:

Profile the demographic, health-related, psychosocial and behavioral characteristics of adults with MEN1 or MEN2.

Outcome Time Frame:

3 Years

Safety Issue:

No

Principal Investigator

Susan Peterson, PhD

Investigator Role:

Principal Investigator

Investigator Affiliation:

M.D. Anderson Cancer Center

Authority:

United States: Institutional Review Board

Study ID:

2006-0783

NCT ID:

NCT00501449

Start Date:

May 2007

Completion Date:

Related Keywords:

  • Multiple Endocrine Neoplasia
  • Multiple Endocrine Neoplasia
  • Questionnaire
  • Psychosocial
  • Surveillance Behaviors
  • MEN Syndromes
  • Neoplasms
  • Endocrine Gland Neoplasms
  • Multiple Endocrine Neoplasia

Name

Location
UT MD Anderson Cancer Center Houston, Texas  77030