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Quality of Life Among Children and Adolescents With Cancer


N/A
9 Years
18 Years
Open (Enrolling)
Both
Cancer

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Trial Information

Quality of Life Among Children and Adolescents With Cancer


Study participants will include all children and adolescents (aged 7 to 21 years old)
currently receiving care from the Hematology/Oncology Clinic at the CMHC, which will serve
as the study site. These individuals will be identified by the health care professionals
working in the clinic. Specific study criteria will include only those individuals who (1)
can read or write in the English language (due to limited availability of translators); (2)
appear to not possibly suffer psychological harm by participating (as determined by any
health care professional working in the Clinic); and (3) do not have a health condition
and/or medical need that supersedes study participation. The weekly list of appointments
will be reviewed by the researchers who already work in the Clinic for appropriateness (JH,
JB and KS). To prevent participation coercion, solicitation for participation will be
provided through the Child Life Specialist (CLS). The CLS is known to each participant and
will function as a data collector for this study.


Inclusion Criteria:

Study participants will include all children and adolescents (aged 7 to
21 years old) currently receiving care from the Hematology/Oncology Clinic at the CMHC,
which will serve as the study site. These individuals will be identified by the health
care professionals working in the clinic. Specific study criteria will include only those
individuals who (1) can read or write in the English language (due to limited availability
of translators); (2) appear to not possibly suffer psychological harm by participating (as
determined by any health care professional working in the Clinic); and (3) do not have a
health condition and/or medical need that supersedes study participation. -

Exclusion Criteria: (1) Those electing not to participate; (2) those with no guardian
available to consent or (3) those not yet diagnosed with a cancer condition.

-

Type of Study:

Observational

Study Design:

Additional Descriptors: Convenience Sample, Additional Descriptors: Psychosocial, Time Perspective: Cross-Sectional, Time Perspective: Retrospective/Prospective

Principal Investigator

Peggy Ward-Smith, PhD

Investigator Role:

Principal Investigator

Investigator Affiliation:

University of Missouri, Kansas City

Authority:

United States: Institutional Review Board

Study ID:

04 05-052E

NCT ID:

NCT00285363

Start Date:

March 2005

Completion Date:

March 2005

Related Keywords:

  • Cancer
  • cancer
  • quality of life
  • adolescents

Name

Location

Children's Mercy Hospitals and ClinicsKansas City, Missouri  64108