Know Cancer

or
forgot password

@neWorld: A Virtual Community For Kids With Cancer


Phase 1/Phase 2
10 Years
15 Years
Not Enrolling
Both
Leukemia, Lymphoma, Psychosocial Effects of Cancer and Its Treatment, Unspecified Childhood Solid Tumor, Protocol Specific

Thank you

Trial Information

@neWorld: A Virtual Community For Kids With Cancer


OBJECTIVES:

- Develop an Internet-based application that allows pediatric patients with cancer to
enter a virtual community with the following capabilities:

- Interact with classmates and participate in classroom activities via e-mail, chat
groups, online field trips, art studio, music room, and game room

- Identify and interact with a community of peers with similar medical conditions

- Access a dictionary to get medical information in understandable terms

- Interact with the medical community online

- Interact with family members online

- Determine the acceptability of this program among groups of these patients and their
classmates, teachers, family members, and healthcare providers using focus groups.

- Determine the effect of this program on self-esteem, coping behaviors, perceived social
support, cancer-relevant medical knowledge, and feelings of control over health destiny
in these patients.

- Determine the effect of this program on the performance of these patients in school.

- Determine the effect of this program in alleviating psychological distress in these
patients.

OUTLINE: This is a multicenter study.

- Phase I: Students, family members, teachers, and health providers participate in focus
groups to provide system design and implementation input and to assess overall
acceptability of a prototype Internet-based application for pediatric cancer patients.

- Phase II: Patients are assigned to 1 of 2 groups, based on participating center.

- Group 1: Patients have access to and utilize the Internet-based application
@neWorld.

- Group 2: Patients do not have access to or utilize @neWorld. In both groups,
patients complete questionnaires measuring psychological distress, quality of
life, self-esteem, coping behaviors, perceived academic and social competence,
perceived social support, cancer-relevant medical knowledge, feelings of control
over health destiny, utilization of psychological services, and performance in
school at baseline and 3 and 6 months.

PROJECTED ACCRUAL: A total of 94 patients (44 for group 1 and 50 for group 2) will be
accrued for this study.

Inclusion Criteria


DISEASE CHARACTERISTICS:

- Diagnosis of cancer

- Currently receiving treatment for cancer

PATIENT CHARACTERISTICS:

Age

- 10 to 15

Performance status

- Active

Life expectancy

- Not specified

Hematopoietic

- Not specified

Hepatic

- Not specified

Renal

- Not specified

Other

- Able to read and speak English

PRIOR CONCURRENT THERAPY:

Biologic therapy

- Not specified

Chemotherapy

- Not specified

Endocrine therapy

- Not specified

Radiotherapy

- Not specified

Surgery

- Not specified

Type of Study:

Interventional

Study Design:

N/A

Principal Investigator

Barbara Rapchak

Investigator Role:

Study Chair

Investigator Affiliation:

Leap of Faith Technologies

Authority:

United States: Federal Government

Study ID:

LFT-NEWORLD

NCT ID:

NCT00070421

Start Date:

April 2003

Completion Date:

January 2005

Related Keywords:

  • Leukemia
  • Lymphoma
  • Psychosocial Effects of Cancer and Its Treatment
  • Unspecified Childhood Solid Tumor, Protocol Specific
  • psychosocial effects of cancer and its treatment
  • unspecified childhood solid tumor, protocol specific
  • childhood acute lymphoblastic leukemia in remission
  • childhood acute myeloid leukemia in remission
  • recurrent childhood acute lymphoblastic leukemia
  • recurrent childhood acute myeloid leukemia
  • recurrent childhood large cell lymphoma
  • recurrent childhood lymphoblastic lymphoma
  • recurrent childhood small noncleaved cell lymphoma
  • stage I childhood Hodgkin lymphoma
  • stage I childhood large cell lymphoma
  • stage I childhood lymphoblastic lymphoma
  • stage I childhood small noncleaved cell lymphoma
  • stage II childhood Hodgkin lymphoma
  • stage II childhood large cell lymphoma
  • stage II childhood lymphoblastic lymphoma
  • stage II childhood small noncleaved cell lymphoma
  • stage III childhood Hodgkin lymphoma
  • stage III childhood large cell lymphoma
  • stage III childhood lymphoblastic lymphoma
  • stage III childhood small noncleaved cell lymphoma
  • stage IV childhood Hodgkin lymphoma
  • stage IV childhood large cell lymphoma
  • stage IV childhood lymphoblastic lymphoma
  • stage IV childhood small noncleaved cell lymphoma
  • recurrent/refractory childhood Hodgkin lymphoma
  • Leukemia
  • Lymphoma
  • Lymphoma, Non-Hodgkin

Name

Location

Leap of Faith Technologies, IncorporatedCrystal Lake, Illinois  60014