Myeloproliferative Neoplasms: an In-depth Case-control Study
Myeloproliferative neoplasm cases
- Clinical diagnosis of polycythemia vera, essential thrombocythaemia or primary
myelofibrosis based on the WHO diagnostic criteria.
- Aged 18 years or older.
- younger than 18 years old.
- where the clinician/General Practitioner (GP) does not provide consent.
- incapable of giving informed consent.
- physically or cognitively incapable of completing the questionnaire.
- too ill to participate
General Practice Controls
Observational Model: Case Control, Time Perspective: Retrospective
Influence of pre- and post- incentives on participation rates.
Difference in participation rates in those receiving: vs. not receiving a pen at initial contact. vs. not receiving a trolley token at initial contact. vs. not receiving a monetary incentive at initial contact. a MOSAICC pen vs. a non-branded pen following second contact. vs. not receiving a trolley token following second contact. a MOSAICC branded Pen +/or trolley token alone vs no non-monetary incentive following a second invite. a MOSAICC branded Pen +/or trolley token alone vs no incentive following a second invite. a MOSAICC branded Pen +/or trolley token alone vs pen/no pen & money following a second invite. 0/1 of these incentives vs. receiving 2/3 incentives following a second invite. Difference in proportion of patients completing study elements comparing: 0/1 vs 2/3 incentives. those receiving pre vs post invitation incentives.
average 2 weeks
United Kingdom: Research Ethics Committee