iPC3 - Integrating Palliative Care and Modern Palliative Care Tools Into the Care of Patients With Pancreas Cancer
- Each patient undergoing treatment at Johns Hopkins for metastatic pancreas cancer will
receive palliative care support during their course to include: palliative care
consultation early in their treatment course; patient decision aids that give survival,
treatment benefits and risks; suggestions to complete such tasks as advance directives,
durable power of medical attorney, wills, family and spiritual reviews as recommend by
the American Society of Clinical Oncology; and when indicated, transition to hospice.
- Patient will have an iPad for their visit, and a corresponding website to print
- Each patient will assess their distress with the Distress thermometer; symptoms with
the Condensed Memorial Symptom Assessment Scale and a depression screen. This
information will be given to the health care practitioner before the patient visit.
- Patients facing a treatment decision will receive a Patient Information Program link
(or paper for those unable to work on the iPad) to review the diagnosis, prognosis,
specific benefits and risks with the proposed chemotherapy. This will then give
transition "prompts" to encourage thinking about advance directives, durable power of
medical attorney, use of hospice, and doing a life review.
- We will also offer a hospice information visit when patient has - in the projection of
the team or treating physician - 3 to 6 months to live.
- The palliative care team will meet at least monthly with each of the enrolled patients.
- Participants will be followed for as long as he or she is alive before receiving
Observational Model: Cohort, Time Perspective: Prospective
Feasibility of the patients with metastatic pancreas cancer to meet with the palliative care team and to complete symptom assessments.
participants will be followed monthly until referred to hospice or until death, an expected average of 1 year
Thomas J Smith, MD
Johns Hopkins Medical Institutions, Sidney Kimmel Comprehensive Cancer Center
United States: Institutional Review Board
|Sidney Kimmel Comprehensive Cancer Center||Lutherville, Maryland|