Trial Information

Interdisciplinary Pituitary Disorders Centre of Excellence: Assessment of Patient Education Tools

This study involves a formative evaluation of the health literacy resources that we have
already developed. We see approximately 60 new patients a year with pituitary disorders,
plus the follow-up patients: all of these patients will be offered the opportunity to
participate in the study. These materials include a website (containing videos,
illustrations and written materials) and plain language educational brochures. The
educational materials include information that patients will need throughout their
experience with a pituitary tumour, ranging from the signs and symptoms of tumours, to
long-term post-operative lifestyle changes. This evaluation will be a mixed-methods
evaluation.

Part A (Think aloud) will use "think-aloud" processes to evaluate the usefulness and ease of
use of a website that we have developed with patients and their families.

Part B (Resource assessment) will involve the use of questionnaires followed by
semi-structured interviews with patients and families before and after using the resources.