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Prospective Ascertainment for Late Effects Among Cancer Survivors


N/A
18 Years
N/A
Open (Enrolling)
Both
Pediatric or Young Adult Cancer Survivors

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Trial Information

Prospective Ascertainment for Late Effects Among Cancer Survivors


Inclusion Criteria:



- 18 years or older

- English speaking

- A personal history of pediatric or young adult cancer

- Followed in the Adult Long-Term Follow-Up Program or Lymphoma Service at MSKCC

Exclusion Criteria:

- Evidence of active progression of disease or recurrence

- Neurocognitive deficits that impair ability to give informed consent.

Type of Study:

Observational

Study Design:

Observational Model: Family-Based, Time Perspective: Prospective

Outcome Measure:

establish a registry of DNA

Outcome Description:

For the purpose of facilitating future genetic laboratory investigations of late effects among cancer survivors. Patients in the ALTFU Program are followed for secondary malignant neoplasms and other adverse outcomes (so-called "late effects") including cardiomyopathy, pulmonary fibrosis, cardiac valvular pathology, osteoporosis, and others. The following data will be ascertained from each study participant: (1) family history information will be ascertained using the Family History Questionnaire (Appendix A); and (2) saliva or blood samples for genetic analysis.

Outcome Time Frame:

4 years

Safety Issue:

No

Principal Investigator

Emily Tonorezos, MD, MPH

Investigator Role:

Principal Investigator

Investigator Affiliation:

Memorial Sloan-Kettering Cancer Center

Authority:

United States: Institutional Review Board

Study ID:

12-143

NCT ID:

NCT01667952

Start Date:

August 2012

Completion Date:

August 2016

Related Keywords:

  • Pediatric or Young Adult Cancer Survivors
  • Family History Questionnaire (FHQ)
  • Blood sample
  • Salvia sample
  • 12-145

Name

Location

Memorial Sloan Kettering Cancer CenterNew York, New York  10021