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Empowering Cancer Survivors Through Information Technology

15 Years
28 Years
Not Enrolling
Cancer Survivor

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Trial Information

Empowering Cancer Survivors Through Information Technology

Individuals randomly assigned to the control group will receive standard of care for the
duration of their participation. This means they will continue to receive information
regarding their diagnosis, treatments and ongoing health needs from their provider (no
access to website).

Individuals randomly assigned to the treatment group will receive access to UMFollowUp, a
secure, HIPAA-compliant website.

All participants will be asked to complete paper-and-pencil surveys at baseline and 9 months
later to determine the impact of the web-based intervention.

Inclusion Criteria:

- History of diagnosis of hematologic malignancy or malignant neoplasm, and in disease
free remission at time of recruitment.

- Must be English-speaking and have access to a computer with internet access, and must
have completed treatment at University of Minnesota Medical Center-Fairview for

Exclusion Criteria:

- Individual with significant visual impairments and neurologic/cognitive difficulties
which limit their ability to see and under our outcome questionnaires or website
content will be excluded from participation.

Type of Study:


Study Design:

Allocation: Randomized, Intervention Model: Single Group Assignment, Masking: Open Label, Primary Purpose: Supportive Care

Outcome Measure:

Cancer Knowledge Survey

Outcome Description:

Measure of patient reported knowledge of their cancer diagnosis, history and treatments.

Outcome Time Frame:

Time of Enrollment and 9 Months Later

Safety Issue:


Principal Investigator

Alicia Kunin-Batson, M.D.

Investigator Role:

Principal Investigator

Investigator Affiliation:

Masonic Cancer Center, University of Minnesota


United States: Institutional Review Board

Study ID:




Start Date:

August 2007

Completion Date:

April 2012

Related Keywords:

  • Cancer Survivor
  • cancer survivor



Masonic Cancer Center, University of Minnesota Minneapolis, Minnesota  55455