National Breast Cancer and Lymphedema Registry
Historically, breast cancer-associated lymphedema has been relatively ignored, with
mis-diagnosis, late diagnosis, and failure to treat. The condition has a measurable,
substantial impact on patient function and perceived quality of life (QOL). Recent pilot
studies suggest that interventions that are designed to facilitate early diagnosis and
preventive strategies have a major impact on the incidence and severity of disease burden.
This registry is designed to prospectively capture the relevant data to document the impact
of preemptive diagnostic and treatment strategies.
Observational Model: Cohort, Time Perspective: Prospective
Preemptive diagnostic and treatment strategies
The methods for lymphedema surveillance and detection will be correlated to the new appearance of lymphedema in this cohort of breast cancer survivors. We will also assess severity of lymphedema and responsiveness to treatment strategies.
Each enrolled patient will be followed for an average of 1 year
Stanley G Rockson
United States: Institutional Review Board
|Stanford University School of Medicine||Stanford, California 94305-5317|