Adolescent Loss: The Impact of Loss on Adolescent Oncology Patients
All participants will be assessed once and asked to complete a bereavement questionnaire
quantifying the losses they have experienced. All participants will be screened for
depression/anxiety as well as life outlook using validated tools. Patients who identify
that they have experienced the loss of someone significant in their life on the bereavement
questionnaire will continue with the study and complete a battery of validated psychological
inventories as described below. They will be asked to identify their most significant loss
in regards to completion of the remainder of the questionnaire. Parents will complete
demographic information, the bereavement questionnaire, and complete inventories of family
coping / cohesion regardless of child's responses to bereavement questionnaire.
- Estimate the prevalence of loss, with particular interest in the extent of peer loss,
in adolescent oncology patients who have been on therapy ≥ 12 months ( ≥ 6 months if
progressive or refractory disease) or off therapy for ≤ 3 years.
- Describe the impact of loss on adolescent oncology patients by focusing on coping
efficacy, psychological distress, meaning-making, and complicated bereavement.
- Describe parental knowledge of losses experienced by an adolescent child who has
recently undergone therapy.
Observational Model: Case-Only, Time Perspective: Prospective
Number of participants who have experienced the death of a friend or relative by type of loss.
The prevalence of loss among the participants will be calculated. The type of losses will be described.
Once on Day 1
Liza Johnson, MD,MPH
St. Jude Children's Research Hospital
United States: Institutional Review Board
|St. Jude Children's Research Hospital||Memphis, Tennessee 38105-2794|