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Concurrent School Attendance And Cancer Therapy: The Experiences of 6-12 Year Old Pediatric Oncology Patients


N/A
6 Years
12 Years
Open (Enrolling)
Both
Leukemia, Lymphoma, Solid Tumor

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Trial Information

Concurrent School Attendance And Cancer Therapy: The Experiences of 6-12 Year Old Pediatric Oncology Patients


The primary objective of this study is to explore 6-12 year old pediatric oncology patients'
perceptions of their school experiences pre and post cancer diagnosis.

This study will utilize qualitative interview methods. Potential participants who meet
inclusion criteria will be approached by the principal investigator to obtain consent and
assent in accordance with institutional guidelines. Upon giving consent, the child will
participate in a one-hour audio-taped interview session with the principal investigator.
The interview session will begin with some general rapport building questions to help the
child grow comfortable with the interviewer, the interview room, and the interview format.
The rest of the interview will consist of questions pertaining to the child's school
experiences both before and during diagnosis and treatment for malignancy. The interview
will conclude with the child being asked to draw a picture of themselves at school before
diagnosis, and of themselves at school since being diagnosed. Demographic data will be
collected from each participant's medical chart pertaining to age, gender, ethnicity,
diagnosis, and the type of school attended before and after diagnosis and the principal
investigator and study staff involved in data coding will complete field note entries
directly following the conclusion of each interview or data coding session (see Appendix V).
The participant's involvement in the study will end at the conclusion of the interview
session.


Inclusion Criteria:



- Participant is 6-12 years of age at the time of diagnosis.

- Participant has a primary diagnosis of leukemia/lymphoma or solid tumor.

- Participant has been on therapy for six months (plus or minus 2 months) at the time
of enrollment on this protocol.

- Participant is able to read and speak English.

Exclusion Criteria:

- Participant has not received any type of schooling services either in the home,
community, or hospital setting since diagnosis.

- Participant did not receive any type of schooling services prior to diagnosis.

Type of Study:

Observational

Study Design:

Observational Model: Case-Only, Time Perspective: Prospective

Outcome Measure:

6-12 year old pediatric oncology patients' perceptions of their school experiences pre and post cancer diagnosis will be explored;

Outcome Description:

This will be done through interviews and drawings.

Outcome Time Frame:

1 year

Safety Issue:

No

Principal Investigator

Jessika C Boles, MEd., CCLS

Investigator Role:

Principal Investigator

Investigator Affiliation:

St. Jude Children's Research Hospital

Authority:

United States: Institutional Review Board

Study ID:

SCHOOL1

NCT ID:

NCT01383473

Start Date:

August 2011

Completion Date:

September 2013

Related Keywords:

  • Leukemia
  • Lymphoma
  • Solid Tumor
  • cancer therapy
  • school attendance
  • cancer diagnosis
  • perception
  • Leukemia
  • Lymphoma

Name

Location

St. Jude Children's Research Hospital Memphis, Tennessee  38105-2794