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Information Needs After Surgery for Colorectal Cancer - From the Perspective of the Patient and Next of Kin

18 Years
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Colorectal Cancer

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Trial Information

Information Needs After Surgery for Colorectal Cancer - From the Perspective of the Patient and Next of Kin

Sample Inclusion criteria are patients over 18 years of age that have gone through a surgery
for colorectal cancer without having a stoma, and their next of kin with whom they live.

Instruments In study I, 100 patients filled in four different instruments 1-2 weeks after
discharge to measure: QOL, information needs, sense of coherence and performance status.

QLQ-C30 and QLQ-CR38 were used to measure QOL. INFO26 were used to measure received
information. The SOC - Sense of Coherence was used to measure sense of coherence. And
finally the scale for ECOG Performance Status was used to measure the level of physical
performance status.

In study II the same patients filled in the same instruments a second time, 5-7 week after

Information about marital status, occupation, diagnosis and prognosis were taken from the
medical record.

Interviews In study III 16 patients both filled in the instruments in study I and II, and
were interviewed to gain a deeper understanding of their information needs. The interviews
were semi structured and will be analysed with content analysis.

In study IV the next of kin to patients in study III were interviewed about their own
information needs in connection to discharge.

The interviews were performed twice for each person, 1-2 weeks after discharge and a second
time, 5-7 week after discharge.

Data sampling The data were collected consecutively, and every third patient living together
with their next of kin were asked to participate in the interviews.

Inclusion Criteria:

- adult over 18 years of age

- surgery for colorectal cancer in one of the three hospitals in the study

- speak and read Swedish

- be able to understand the instructions written in the questionnaires

Exclusion Criteria:

- receiving a stoma

- don't want to participate

- not completed at least half of the items in both questionnaires

Type of Study:


Study Design:

Observational Model: Cohort, Time Perspective: Prospective

Principal Investigator

Maria Lithner, RN

Investigator Role:

Principal Investigator

Investigator Affiliation:

Surgical clinic, Lund, Sweden


Sweden: The National Board of Health and Welfare

Study ID:

Etics review Dnr 558/2006



Start Date:

January 2007

Completion Date:

August 2009

Related Keywords:

  • Colorectal Cancer
  • Patient education. Patient discharge. Needs assessment.
  • Colorectal Neoplasms