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SwissNET - a Prospective Registry of Patients With Neuroendocrine Tumours in Switzerland


N/A
N/A
N/A
Open (Enrolling)
Both
Neuroendocrine Tumors, Carcinoid Tumor

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Trial Information

SwissNET - a Prospective Registry of Patients With Neuroendocrine Tumours in Switzerland


Background

Gastroentero-pancreatic neuroendocrine tumours (GEP-NETs) are generally classified as rare
diseases. Little is known about their cell biology and their mechanistic regulation. During
the last years, the incidence of GEP-NETs is continuously increasing worldwide. In parallel,
novel treatment options are currently evaluated which may substantially improve prognosis of
patients with NETs. Data on such tumours in Switzerland, however, is scarce and treatment
strategies vary throughout the country.

Objective

To systematically and prospectively collect clinical information of patients with GEP-NETs
in Switzerland based on a histologically confirmed diagnosis.

Methods

All NETs of both, gastrointestinal and pulmonary origin are included provided that patients
have given informed consent. Data will be entered prospectively and anonymised in a
specifically designed database. Contributing centres and general practitioners are visited
by a study nurse, patient files are analysed and data is transferred to the database. In
case of conflicting evidence, questions are resolved in collaboration with a review board of
SwissNET. Evaluation of treatment modalities and patient outcomes (e.g. mortality,
hospitalisation rate) will take place within regular time frames.


Inclusion Criteria:



- Gastroenteropathic neuroendocrine tumor

- Pulmonary neuroendocrine tumor (typical or atypical carcinoid)

- Diagnosis in Switzerland

- Given informed consent

Type of Study:

Observational

Study Design:

Observational Model: Cohort, Time Perspective: Prospective

Outcome Measure:

Tumor-related mortality

Outcome Time Frame:

Every 5 years

Safety Issue:

No

Principal Investigator

Aurel Perren, MD

Investigator Role:

Study Director

Investigator Affiliation:

Institute of Pathology, University of Bern, Bern

Authority:

Switzerland: Federal Office of Public Health (Bundesamt fuer Gesundheit)

Study ID:

BAG 035.0002-20/19

NCT ID:

NCT01039922

Start Date:

January 2008

Completion Date:

January 2028

Related Keywords:

  • Neuroendocrine Tumors
  • Carcinoid Tumor
  • Neuroendocrine Tumors
  • Registries
  • Carcinoid Tumor
  • Neuroendocrine Tumors

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