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Characterizing Lone Parenting: A Multi-Institutional Pilot Study of the Perceptions of Support and Perceived Stress of Lone Parents of Children With Cancer


N/A
18 Years
65 Years
Open (Enrolling)
Both
Cancer

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Trial Information

Characterizing Lone Parenting: A Multi-Institutional Pilot Study of the Perceptions of Support and Perceived Stress of Lone Parents of Children With Cancer


Background:

- Research examining the potential impact of childhood chronic illness on parents and
families has delineated a myriad of stressors that parents may experience, including
financial stress, role strains, separations, interruptions in daily routines and plans
for the future, and general uncertainty regarding the child's prognosis.

- All of these possible experiences may lead directly and indirectly to anxiety,
depression, posttraumatic-stress, hopelessness, and feelings of loss of control in
parents and families.

- The number of families headed by single, or lone parents has increased significantly,
with 3 in 10 children now living in single parent homes.

- It is not known whether distress is greater for parents who are lone parents.

- Lone-parent families earn on average only 55% of what married-parent families earn, and
are four times more likely to live in poverty.

- It is unclear how lone parents trying to navigate the complex needs of maintaining a
home, family, and a chronically ill child adapt to these challenges.

- It is also unclear how many parents who check single on a standardized forced choice
questionnaire format consider themselves to be lone when it comes to the experience
of caring for their child with cancer.

Objective:

- Aim 1: To define and characterize lone parents

- Aim 2: To describe perceptions of social support and how they relate to lone and
non-lone parenting

- Aim 3: To identify distress outcomes in parents of children with cancer who identify
themselves as being lone when it comes to the experience of caring for a child with
cancer

Study Population:

English and Spanish speaking parents of a child (1through 17 years) with a malignancy,
diagnosed 6-18 months before recruitment will be invited to participate in this study.

Design:

-This is a pilot, exploratory study designed to describe the perceptions of support and
distress outcomes of single/lone parents of a child with cancer. Participants will be
administered a Lone Parent Support Questionnaire designed for this study. The study will be
completed in one visit (< 30mins).

Inclusion Criteria


- INCLUSION CRITERIA:

1. Parents or primary guardians of children (ages 6 months through 17 years) with
any malignancy whose child is 6-18 months post-diagnosis.

2. Ability to give informed consent.

3. English or Spanish speaking

EXCLUSION CRITERIA:

1. Severe psychological distress which - in the judgment of the Principal or Associate
Investigators at each respective collection site- would compromise the participant's
ability to understand the questionnaire or is likely to interfere with the study
procedures or results.

2. Relapse of malignancy

Type of Study:

Observational

Study Design:

Time Perspective: Prospective

Principal Investigator

Maryland Pao, M.D.

Investigator Role:

Principal Investigator

Investigator Affiliation:

National Institute of Mental Health (NIMH)

Authority:

United States: Federal Government

Study ID:

090194

NCT ID:

NCT00969579

Start Date:

August 2009

Completion Date:

Related Keywords:

  • Cancer
  • Cancer
  • Psychosocial Stress
  • Parenting

Name

Location

National Institutes of Health Clinical Center, 9000 Rockville PikeBethesda, Maryland  20892
Memorial Sloan Kettering Cancer CenterNew York, New York  10021
University of Mississippi Medical CenterJackson, Mississippi  39216-4505
Medical College of WisconsinMilwaukee, Wisconsin  53226
St. Jude Children's Research HospitalMemphis, Tennessee  38105-2794
Akron Children's HospitalAkron, Ohio  44308-1062
University of Alabama at BirminghamBirmingham, Alabama  35294-3300
Dana Farber Cancer InstituteBoston, Massachusetts  02115
Miller Children's HospitalLong Beach, California  90806
Oklahoma State UniversityStillwater, Oklahoma