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Caregiver Assessments of the Quality of Home Hospice Care: A Comparison Across 3 Ethnic Groups (A Preliminary Study)


N/A
18 Years
N/A
Open (Enrolling)
Both
Advanced Cancer

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Trial Information

Caregiver Assessments of the Quality of Home Hospice Care: A Comparison Across 3 Ethnic Groups (A Preliminary Study)


After the death of their loved-ones, caregivers will be asked to report on the care received
by their care recipient and the quality of practical and emotional care provided to them by
hospice by completing the 25-minute FEHC questionnaire over the phone. Caregivers will also
be asked 16 additional questions to assess their attitudes and beliefs about hydration at
the end of life, and a brief questionnaire to assess past and current levels of grief
(TRIG). The additional questions on hydration and grief can easily be completed in less than
10 minutes over the phone. The entire interview should take no more than 35 minutes to
complete.

Bereaved caregivers who have participated in the parent grant and have lost their loved one
within 3-23 months will be mailed a letter from Drs. Bruera and Torres inviting them to
participate in the voluntary supplemental after-death survey. The letter will include a
brief description of the research study and appropriate contact information for the
caregiver to call if she/he is interested in participating. The letters then will be
followed up by a phone call from Dr. Torres to verify receipt of the letter. If the
caregivers express their interest in participating in the study, they will be asked a few
screening questions over the phone to verify their eligibility. Once found eligible for the
study, a telephone verbal consent will be obtained.

Dr. Isabel Torres will conduct the phone interviews with 128 primary caregivers who had
previously completed the parent grant protocol.


Inclusion Criteria:



1. Bereaved family caregivers who completed their participation in the parent protocol
(2006-0494) and have lost their loved one within 3-23 months.

2. Caregivers who participated in the parent grant met the inclusion/exclusion criteria
of the parent grant.

Exclusion Criteria:

1. Bereaved family caregivers who did not complete their participation in the parent
protocol or any other caregiver who was never enrolled in the parent protocol
(2006-0494).

Type of Study:

Observational

Study Design:

Time Perspective: Prospective

Outcome Measure:

Survey assessment of cross-ethnic differences in caregivers' quality of hospice care

Outcome Time Frame:

3-23 Months After Hospice Care

Safety Issue:

No

Principal Investigator

Isabel Torres, MPH, DRPH

Investigator Role:

Principal Investigator

Investigator Affiliation:

UT MD Anderson Cancer Center

Authority:

United States: Institutional Review Board

Study ID:

2009-0031

NCT ID:

NCT00895024

Start Date:

April 2009

Completion Date:

Related Keywords:

  • Advanced Cancer
  • Caregiver
  • Questionnaire
  • Home Hospice Care
  • Family Evaluation of Hospice Care
  • FEHC
  • The Texas Revised Inventory of Grief
  • TRIG
  • Cross-ethnic differences
  • Parenteral Hydration
  • Grief
  • Neoplasms

Name

Location

UT MD Anderson Cancer CenterHouston, Texas  77030