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Improving Patient-Provider Communication in Cancer Care

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Trial Information

Improving Patient-Provider Communication in Cancer Care

Improving shared decision making (SDM), patient-provider communication and incorporating
patients' illness experiences and preferences into patient care are high priority health
policy goals. However, this is difficult to accomplish without methods and systems that
assist patients in sharing their illness experiences and clinicians in integrating this
information into patient care. Choice is a computer-assisted, interactive communication and
support system for cancer patients designed for this purpose. This interdisciplinary,
international research collaboration will test effects of Choice in a pretest-post test
clinical trial with 200 leukemia and lymphoma patients. We hypothesize that when patients
use Choice for symptom and preference assessments and this information is provided to their
clinicians to support consultations in routine practice, (1) patient-provider communication
will be more patient-centered; (2) documented care will be more congruent with patients'
reported symptoms and preferences; (3) patients will experience lower levels of anxiety and
stress during consultations; and (4) they will be more satisfied with the consultation than
the "usual care" control group. To better understand the mechanisms by which these effects
occur, we will investigate relationships between communication style, documented patient
care, anxiety and satisfaction; and explore time requirements, perceived usefulness and ease
of use of Choice by patients and clinicians. Controlling for gender, age, diagnosis and
type/stage of treatment, analyses of covariance and repeated measurement models will be
primarily used for hypotheses testing, correlations and descriptive statistics to answer
research questions. This study will contribute to new technologies to support SDM and
patient-provider partnerships in health care that can significantly improve patient-provider
communication, patient-centered care and physical, emotional and psycho-social well-being of
cancer patients.

Inclusion Criteria:

- Diagnosed with leukemia or lymphoma and in treatment or follow up after treatment
within last 12 months.

- Being able to understand, speak and write Norwegian.

- Informed consent

Exclusion Criteria:

- If clinician know patient will receive bad news regarding outcome.

Type of Study:


Study Design:

Allocation: Non-Randomized, Endpoint Classification: Efficacy Study, Intervention Model: Single Group Assignment, Masking: Open Label, Primary Purpose: Supportive Care

Outcome Measure:

Patient satisfaction

Outcome Time Frame:

one point assessment

Safety Issue:



Norway:National Committee for Medical and Health Research Ethics

Study ID:

RCN 177500/V50



Start Date:

August 2006

Completion Date:

June 2009

Related Keywords:

  • Lymphoma
  • computer support
  • patient-provider communication
  • patient-centered care
  • cancer
  • Lymphoma