Biospecimen Resource for Familial Pancreas Research, a Data and Tissue Registry (Also Known as a Bio-repository, Bio-bank, Data and Tissue Database, Data and Tissue Bank, Etc.) to Help Advance Research in Familial Pancreas Disease
- To collect clinical history, family history, and blood and/or tissue samples from
family members of patients diagnosed with pancreatic diseases, pancreatic cancer, or
- To learn whether inherited factors increase the risk of pancreatic diseases, pancreatic
cancer, or other cancers.
OUTLINE: Study participants undergo collection of blood and/or tissue samples as well as
survey data for inclusion in a familial data and tissue registry. Participants complete two
baseline surveys regarding their personal, family, health, and environmental exposure
histories and regarding their opinions on cancer and cancer screening. Patients also
complete a follow-up survey at 1 year and undergo review of their medical records.
Observational Model: Family-Based, Time Perspective: Prospective
Collection of familial data and biospecimens in a data and tissue repository for familial pancreas research
Gloria M. Petersen, PhD, FACMG
United States: Institutional Review Board
|Mayo Clinic Cancer Center||Rochester, Minnesota 55905|