The Exceptional Patient in Cancer Care
The investigators of this study are exploring the experience of people with cancer who are
considered by their physicians as having an exceptional course of disease - people who have
defied the odds and remain well despite the severity of the original diagnosis.
Participation in this study is completely voluntary. Lessons learned from recorded
experience(s) may be helpful to other patients and can be a basis for future studies that
may benefit other patients.
To participate in this important study is simple and not time consuming. You will have only
one face-to-face or telephone interview with a research assistant. During the interview you
will simply be asked to describe your perspective, thoughts, and behaviors that you think
are related to your disease course and lessons that you think others may gain benefit from.
The interview will last about one hour and will be conducted at a time that is convenient
If you agree to participate a research assistant will schedule a time for a recorded
interview by phone or if possible at a location convenient to you. The interviews will be
taped and transcribed. All recorded interviews will be retained for a minimum of 6 years.
Observational Model: Case-Only, Time Perspective: Prospective
Qualitative Data Collection: Patients' Experience of Exceptional Disease Course
Moshe A. Frenkel, MD
M.D. Anderson Cancer Center
United States: Institutional Review Board
|UT MD Anderson Cancer Center||Houston, Texas 77030|