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The Exceptional Patient in Cancer Care

18 Years
Not Enrolling
Advanced Cancer

Thank you

Trial Information

The Exceptional Patient in Cancer Care

The investigators of this study are exploring the experience of people with cancer who are
considered by their physicians as having an exceptional course of disease - people who have
defied the odds and remain well despite the severity of the original diagnosis.

Participation in this study is completely voluntary. Lessons learned from recorded
experience(s) may be helpful to other patients and can be a basis for future studies that
may benefit other patients.

To participate in this important study is simple and not time consuming. You will have only
one face-to-face or telephone interview with a research assistant. During the interview you
will simply be asked to describe your perspective, thoughts, and behaviors that you think
are related to your disease course and lessons that you think others may gain benefit from.
The interview will last about one hour and will be conducted at a time that is convenient
for you.

If you agree to participate a research assistant will schedule a time for a recorded
interview by phone or if possible at a location convenient to you. The interviews will be
taped and transcribed. All recorded interviews will be retained for a minimum of 6 years.

Inclusion Criteria:

1. 18 years of age or older

2. Ability to speak and read English with patients residing in the US, ability to speak
and read Hebrew with patients residing in Israel.

3. Diagnosis of cancer confirmed by pathology.

4. Exceptional disease course as identified by patients' physician, in terms of survival
and unusual disease course that is appropriately medically documented.

5. Consent to participate in this study.

Exclusion Criteria:

1. Inability to understand the intent of the study.

2. Medical condition that would preclude participation in an interview session lasting
30-45 minutes.

3. Diagnosis of active psychosis or severe cognitive impairment confirmed by the
patient's attending physician.

Type of Study:


Study Design:

Observational Model: Case-Only, Time Perspective: Prospective

Outcome Measure:

Qualitative Data Collection: Patients' Experience of Exceptional Disease Course

Outcome Time Frame:

2 Years

Safety Issue:


Principal Investigator

Moshe A. Frenkel, MD

Investigator Role:

Principal Investigator

Investigator Affiliation:

M.D. Anderson Cancer Center


United States: Institutional Review Board

Study ID:




Start Date:

August 2007

Completion Date:

August 2010

Related Keywords:

  • Advanced Cancer
  • Advanced Cancer
  • Exceptional Patient
  • Cancer Care
  • Interview
  • Neoplasms



UT MD Anderson Cancer CenterHouston, Texas  77030