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Protocol for Registration and Consent to the Childhood Cancer Research Network - A Limited Institution Pilot


N/A
N/A
20 Years
Not Enrolling
Both
Unspecified Childhood Solid Tumor, Protocol Specific

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Trial Information

Protocol for Registration and Consent to the Childhood Cancer Research Network - A Limited Institution Pilot


OBJECTIVES:

- Obtain informed consent from parents (and the child, when appropriate) of children
diagnosed with cancer (who are under 21 years of age) to register their child's name
and address with the Childhood Cancer Research Network.

- Obtain informed consent from parents (and the child, when appropriate) of children
diagnosed with cancer (who are under 21 years of age) to be contacted in the future for
possible participation in non-therapeutic research studies involving the parents and/or
child.

- Facilitate the systematic registration of pediatric and adolescent patients diagnosed
with cancer into the Childhood Cancer Research Network.

OUTLINE: Consent is obtained from parents (and pediatric patients, where applicable) to
register the patient's and parent's names and addresses with the Childhood Cancer Research
Network, provide a copy of the pathology report to the Network, and contact parents in the
future for possible non-therapeutic research studies involving the parents and/or child.

Information provided will be held in strict confidence.

PROJECTED ACCRUAL: Not specified

Inclusion Criteria


DISEASE CHARACTERISTICS:

- Child (< 21 years of age) with newly diagnosed cancer

PATIENT CHARACTERISTICS:

- Not specified

PRIOR CONCURRENT THERAPY:

- Not specified

Type of Study:

Interventional

Study Design:

Intervention Model: Single Group Assignment, Masking: Open Label

Outcome Measure:

Informed consent collection to register with the Childhood Cancer Research Network

Principal Investigator

Julie A. Ross, PhD

Investigator Role:

Study Chair

Investigator Affiliation:

University of Minnesota - Clinical and Translational Science Institute

Authority:

United States: Federal Government

Study ID:

AADM01P1

NCT ID:

NCT00433394

Start Date:

May 2001

Completion Date:

January 2011

Related Keywords:

  • Unspecified Childhood Solid Tumor, Protocol Specific
  • unspecified childhood solid tumor, protocol specific

Name

Location

Carole and Ray Neag Comprehensive Cancer Center at the University of Connecticut Health CenterFarmington, Connecticut  06360-2875
Norris Cotton Cancer Center at Dartmouth-Hitchcock Medical CenterLebanon, New Hampshire  03756-0002
Cancer Research Center of HawaiiHonolulu, Hawaii  96813
St. Christopher's Hospital for ChildrenPhiladelphia, Pennsylvania  19134-1095
Driscoll Children's HospitalCorpus Christi, Texas  78466
Fletcher Allen Health Care - University Health Center CampusBurlington, Vermont  05401
Children's Medical Center - DaytonDayton, Ohio  45404
East Tennessee Children's HospitalKnoxville, Tennessee  37901
Jonathan Jaques Children's Cancer Center at Miller Children's HospitalLong Beach, California  90801
Lee Cancer Care of Lee Memorial Health SystemFort Myers, Florida  33901
University of Florida Shands Cancer CenterGainesville, Florida  32610-0232
Breslin Cancer Center at Ingham Regional Medical CenterLansing, Michigan  48910
Children's Hospitals and Clinics of MinneapolisMinneapolis, Minnesota  55404
Hackensack University Medical Center Cancer CenterHackensack, New Jersey  07601
NYU Cancer Institute at New York University Medical CenterNew York, New York  10016
Mission Hospitals - Memorial CampusAsheville, North Carolina  28801
Tod Children's Hospital - Forum HealthYoungstown, Ohio  44501
Advocate Lutheran General Cancer Care CenterPark Ridge, Illinois  60068-1174
Albany Medical Center HospitalAlbany, New York  12208-3419