Lymphangioleiomyomatosis (LAM) Registry
LAM is a rare disease that predominantly affects women of child-bearing age. To study in
more detail this rare disease, this multi-center project will establish a registry of
persons with LAM. By combining data from 6 centers and outside physicians, this study may
yield valuable information regarding the rate of decline in pulmonary function and quality
of life in individuals with LAM. These patients will be followed over a five-year period.
Tissue collected from study participants may facilitate future studies into the molecular
basis of LAM.
United States: Federal Government
|National Heart, Lung and Blood Institute (NHLBI)||Bethesda, Maryland 20892|